Sclerosi multipla e funzionamento familiare: dati preliminari di un’indagine multicentrica sul territorio italiano

Titolo Rivista PSICOLOGIA DELLA SALUTE
Autori/Curatori Virginia Perutelli, Marialaura Di Tella, Lidia Mislin Streito, Valentina Tesio, Marinella Clerico, Lorys Castelli
Anno di pubblicazione 2025 Fascicolo 2025/1
Lingua Italiano Numero pagine 13 P. 147-163 Dimensione file 192 KB
DOI 10.3280/PDS2025-001011
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FrancoAngeli è membro della Publishers International Linking Association, Inc (PILA)associazione indipendente e non profit per facilitare (attraverso i servizi tecnologici implementati da CrossRef.org) l’accesso degli studiosi ai contenuti digitali nelle pubblicazioni professionali e scientifiche

La sclerosi multipla (SM) è una malattia autoimmune e neurodegenerativa del sistema nervoso centrale. A seconda della localizzazione e dell’entità delle lesioni, le persone con diagnosi di SM possono sperimentare sintomi psicologici capaci di compromettere la quotidianità. Per questa patologia non esiste ancora una cura definitiva, il che influisce negativamente nei nuclei familiari con un membro della coppia genitoriale con SM, in cui si è soliti assistere ad un’interferenza negativa sia sulle relazioni coniugali che sul legame parentale. A partire dal progetto di ricerca generale che si pone come obiettivo quello di indagare tali fattori in suddetti nuclei di famiglie, il presente studio riporta i risultati preliminari dell’indagine ancora in corso, riguardanti le sole persone con SM. Ai partecipanti è stato chiesto di compilare le seguenti scale: la Hospital and Anxiety Depression Scale (HADS), la Multidimensional Scale of Perceived Social Support (MSPSS), la Short form of the Family Assessment Measure Third Edition (Brief FAM-III) e la Dyadic Adjustment Scale (DAS). Il campione finale, composto da 55 persone con SM, ha riportato alla DAS un punteggio statisticamente inferiore rispetto alla popolazione generale. Inoltre, alla HADS rispettivamente il 44% e il 40% ha superato il cut-off circa la manifestazione della sintomatologia ansioso-depressiva e minori livelli al Brief FAM-III hanno correlato con minori punteggi al MSPSS e maggiori alla HADS. Tali risultati dovranno essere confermati dall’analisi della totalità dei dati raccolti da ciascuno dei 13 centri SM attualmente coinvolti nel progetto generale.;

Keywords:sclerosi multipla, psicologia clinica, funzionamento familiare, distress psicologico

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Virginia Perutelli, Marialaura Di Tella, Lidia Mislin Streito, Valentina Tesio, Marinella Clerico, Lorys Castelli, Sclerosi multipla e funzionamento familiare: dati preliminari di un’indagine multicentrica sul territorio italiano in "PSICOLOGIA DELLA SALUTE" 1/2025, pp 147-163, DOI: 10.3280/PDS2025-001011