Measuring Health Information-Seeking Behavior: The Online Self-care Scale

Titolo Rivista SALUTE E SOCIETÀ
Autori/Curatori Alessia Bertolazzi, Linda Lombi, Marco Terraneo
Anno di pubblicazione 2023 Fascicolo 2023/3
Lingua Inglese Numero pagine 19 P. 177-195 Dimensione file 506 KB
DOI 10.3280/SES2023-003013
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During the last decades, researchers have shown an increased attention towards the practice of health information seeking online. This interest has been driven by a desire to understand how it influences health beliefs, attitudes, and behaviors among laypersons. Although many tools have been proposed to measure health information seeking, they present some limits. Through an online survey among 783 Italian university students, our study aims at developing a self-report instrument to measure individuals’ online health information-seeking behavior, the Online Self-care Scale (OSS), considering the twofold activity of seeking and employing information (the “Information seeking” and “Self-care practice”). We examined the reliability and construct validity of the OSS’s self-report scale and explored the association between Online Self-Care Scale and gender, socioeconomic status (SES), self-reported health status, and digital health literacy. Our findings show both acceptable discriminant and convergent validities for the OSS. The validity has also been assessed through the known-group validity, namely evaluating if OSS can discriminate between groups of individuals demonstrating different scores on the test. Therefore, the OSS Scale is a valid and reliable instrument to measure the level of involvement of individuals in health information retrieval, allowing researchers to distinguish between a merely information-seeking activity and an application of the information by the seekers.

Keywords:Health Information-Seeking; Online Health Information; Digital Health Literacy; Self-care; Health status; Scale validation.

  1. Anker A.E., Reinhart A.M., Feeley H. (2011). Health information seeking: A review of measures and methods. Patient Education and Counseling, 82(3): 346-354.
  2. Ayers S., Kronenfeld J. (2007). Chronic Illness and Health-seeking Information on the Internet. Health, 11(3): 327-47. DOI: 10.1177/136345930707754
  3. Basnyat I., Nekmat E., Jiang S., Lin J. (2018). Applying the Modified Comprehensive Model of Information Seeking to Online Health Information Seeking in the Context of India. Journal of Health Communication, 23(6): 563-572. DOI: 10.1080/10810730.2018.149305
  4. Brady E., Segar J., Sanders C. (2016). “You get to know the people and whether they’re talking sense or not”: Negotiating trust on health-related forums. Social Science and Medicine, 162: 151-157.
  5. Brodie M., Flournoy R.E., Altman D.E., Blendon R.J., Benson J.M., Rosenbaum M.D. (2000). Health information, the Internet and the digital divide. Health Affairs, 19: 255-265.
  6. Chen Y.Y., Li C.M., Liang J.C., Tsai C.C. (2018). Health Information Obtained from the Internet and Changes in Medical Decision Making: Questionnaire Development and Cross-Sectional Survey. Journal of Medical Internet Research, 20: e47.
  7. Cline R., Haynes K. (2001). Consumer health information seeking on the Internet: The state of the art. Health Education Research, 16(6): 671-692.
  8. Cotten S. (2001). Implications of Internet technology for medical sociology in the new millennium. Sociological Spectrum, 21: 319-340. DOI: 10.1080/02732170130020201
  9. Cotton S., Gupta S. (2004). Characteristics of online and offline health information seekers and factors that discriminate between them. Social Science and Medicine, 59: 1795-806.
  10. Czaja R., Manfredi C., Price J. (2003). The determinant and consequences of information-seeking among cancer patients. Journal of Health Communication, 8: 529-562. DOI: 10.1080/71610041
  11. Demirci Ş., Uğurluoğlu Ö., Konca M., Çakmak C. (2021). Socio-demographic characteristics affect health information seeking on the Internet in Turkey. Health Information and Libraries Journal, 38(4): 304-312.
  12. Diviani N., Dima A.L., Schulz P.J. (2017). A psychometric analysis of the Italian version of the eHealth literacy scale using item response and classical test theory methods. Journal of Medical Internet Research, 19(4): e114.
  13. Dutta-Bergman M.J. (2004a). Developing a profile of consumer intention to seek out additional health information beyond the doctor: Demographic, communicative and psychographic factors. Health Communication, 17: 1-16.
  14. Dutta-Bergman M.J. (2004b). Primary sources of health information: Comparisons in the domain of health attitudes, health cognitions and health behaviors. Health Communication, 16: 273-288. DOI: 10.1207/S15327027HC1603_
  15. Ensminger M.E., Fothergill K. (2003). A decade of measuring SES: What it tells us and where to go from here. In: Bornstein M.H., Bradley R.H., eds., Socioeconomic status, parenting, and child development. Mahvah N.J: Lawrence Erlbaum Associates.
  16. Fiksdal A., Kumbamu A., Jadhav A., Cocos C., Nelsen L., Pathak J., McCormick J. (2014). Evaluating the Process of Online Health Information Searching: A Qualitative Approach to Exploring Consumer Perspectives. Journal of Medical Internet Research, 16(10): e224.
  17. Ford J.L., Douglas M., Barrett A.K. (2023). The role of pandemic fatigue in seeking and avoiding information on COVID-19 among young adults. Health Communication, 38(11): 2336-2349. DOI: 10.1080/10410236.2022.206921
  18. Fox S., Rainie L. (2000). The online health care revolution: How the web helps Americans take better care of themselves. Washington, DC: The Pew Internet and American Life Project.
  19. Freimuth V.S., Stein J.A., Kean T.J. (1989). Searching for health information: The cancer information service model. Philadelphia: University of Pennsylvania Press.
  20. Graffigna G., Barello S., Bonanomi A., Riva G. (2017). Factors affecting patients’ online health information-seeking behaviours: The role of the Patient Health Engagement (PHE) Model. Patient Education and Counseling, 100(10): 1918-1927.
  21. Gray N.J., Klein J.D., Noyce P.R., Sesselberg T.S., Cantrill J.A. (2005). Health information-seeking behaviour in adolescence: The place of the Internet. Social Sciences and Medicine, 60: 1467-1478.
  22. Hallyburton A., Evarts L.A. (2014). Gender and online health information seeking: A five survey meta-analysis. Journal of Consumer Health on the Internet, 18(2): 128-142. DOI: 10.1080/15398285.2014.90226
  23. Hankins M. (2007). Questionnaire discrimination: (re)-introducing coefficient δ. BMC Medical Research Methodology, 7: 19. DOI: 10.1186/1471-2288-7-1
  24. Hardey M. (1999). Doctor in the house: The Internet as a source of lay health knowledge and the challenge to expertise. Sociology of Health and Illness, 21(6): 820-835. DOI: 10.1111/1467-9566.0018
  25. Hassan S., Masoud O. (2021). Online health information seeking and health literacy among non-medical college students: gender differences. Journal of Public Health, 29: 1267-1273.
  26. Hsieh H.F., Shannon S.E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9): 1277-1288. DOI: 10.1177/104973230527668
  27. Htay M.N.N., Parial L.L., Tolabing M.C., Dadaczynski K., Okan O., Leung A.Y.M., Su T.T. (2022). Digital health literacy, online information-seeking behaviour, and satisfaction of Covid-19 information among the university students of East and South-East Asia. PloS One, 17(4): e0266276.
  28. Jacobs W., Amuta A.O., Jeon K.C. (2017). Health information seeking in the digital age: An analysis of health information seeking behavior among US adults. Cogent Social Sciences, 3(1): 1302785. DOI: 10.1080/23311886.2017.130278
  29. Jenkinson C., Coulter A., Wright L. (1993). Short form 36 (SF36) health survey questionnaire: normative data for adults of working age. British Medical Journal, 306(6890): 1437-1440.
  30. Jiang S., Street R.L. (2017). Pathway linking Internet health information seeking to better health: A moderated mediation study. Health Communication, 32(8): 1024-1031. DOI: 10.1080/10410236.2016.119651
  31. Johnson J.D., Meischke H. (1993). A comprehensive model of cancer-related information seeking applied to magazines. Human Communication Research, 19(3): 343-367.
  32. Kline R.B. (2005). Principles and practice of structural equation modelling. New York: Guildford Press.
  33. Lalazaryan A., Zare-Farashbandi F. (2014). A Review of models and theories of health information seeking behavior. International Journal of Health System and Disaster Management, 2: 193-203. DOI: 10.4103/2347-9019.14437
  34. Sillence E., Briggs P., Harris P.R., Fishwick L. (2007). How do patients evaluate and make use of online health information? Social Science and Medicine, 64(9): 1853-1862.
  35. Skarpa P.E., Garoufallou E. (2021). Information seeking behavior and COVID-19 pandemic: A snapshot of young, middle aged and senior individuals in Greece. International journal of Medical Informatics, 150: 104465.
  36. Skinner H., Biscope S., Poland B. (2003). Quality of internet access: Barrier behind internet use statistics. Social Science and Medicine, 57: 875-880.
  37. Smailhodzic E., Hooijsma W., Boonstra A., Langley D.J. (2016). Social media use in healthcare: A systematic review of effects on patients and on their relationship with healthcare professionals. BMC Health Services Research, 16(1): 1-14.
  38. Sonnenberg F.A. (1997). Health Information on the Internet: Opportunities and Pitfalls. Archives of Internal Medicine, 157(2): 151-153.
  39. Southwell B.G., Niederdeppe J., Cappella J.N., Gaysynsky A., Kelley D.E., Oh A., Peterson E.B., Chou W.S. (2019). Misinformation as a misunderstood challenge to public health. American Journal of Preventive Medicine, 57(2): 282-285.
  40. Suziedelyte A. (2012). How Does Searching for Health Information on the Internet Affect Individuals’ Demand for Health Care Services. Social science and medicine, 75: 1828-35.
  41. Tustin N. (2010). The role of patient satisfaction in online health information seeking. Journal of Health Communication, 15(1): 3-17. DOI: 10.1080/1081073090346549
  42. Wagner T.H., Bundorf M.K., Singer S.J., Baker L.C. (2005). Free Internet access, the digital divide and health information. Medical Care, 43: 415-420.
  43. Wang X., Shi J.J., Kong H. (2021). Online health information seeking: a review and meta-analysis. Health Communication, 36(10): 1163-1175. DOI: 10.1080/10410236.2020.174882
  44. Wang Y., McKee M., Torbica A., Stuckler D. (2019). Systematic literature review on the spread of health-related misinformation on social media. Social Science and Medicine, 240: 112552.
  45. Wong D.K.K., Cheung M.K. (2019). Online health information seeking and ehealth literacy among patients attending a primary care clinic in Hong Kong: A cross-sectional survey. Journal of Medical Internet Research, 21(3): e10831. DOI: 10.2196/1083
  46. Ybarra M., Suman M. (2008). Reasons, assessments and actions taken: sex and age differences in the use of Internet health information. Health Education Research 23(3): 512-521.
  47. Shieh C., Mays R., McDaniel A., Yu J. (2009). Health literacy and its association with the use of information sources and with barriers to information seeking in clinic based pregnant women. Health Care for Women International, 30: 971-88. DOI: 10.1080/0739933090305215
  48. Seçkin G. (2020). Expansion of Parson’s sick role into cyberspace: Patient information consumerism and subjective health in a representative sample of U.S. internet users. Social Science and Medicine, 247: 112733.
  49. Richtering S.S., Hyun K., Neubeck L., Coorey G., Chalmers J., Usherwood T., Peiris D., Chow C.K., Redfern J. (2017). eHealth literacy: predictors in a population with moderate-to-high cardiovascular risk. JMIR human factors, 4(1): e6217.
  50. Rice R.E. (2006). Influences, usage and outcomes of Internet health information searching: Multivariate results from the Pew surveys. International Journal of Medical Informatics, 75(1): 8-28.
  51. Reinfeld-Kirkman N., Kalucy E.C., Roeger S.L. (2010). The relationship between self-reported health status and the increasing likelihood of South Australians seeking Internet health information. Australian and New Zealand Journal of Public Health, 34(4): 422-426.
  52. Porta M.A. (2008). Dictionary of Epidemiology. New York: Oxford University Press.
  53. Perez S.L., Kravitz R.L., Bell R.A., Chan M.S., Paterniti D.A. (2016). Characterizing internet health information seeking strategies by socioeconomic status: a mixed methods approach. BMC medical informatics and decision making, 16(1): 1-9.
  54. Pang P.C.I., Chang S., Verspoor K., Pearce J. (2016). Designing health websites based on users’ web-based information-seeking behaviors: A mixed-method observational study. Journal of Medical Internet Research, 18(6): e145.
  55. Norman C.D., Skinner H.A. (2006). eHEALS: the eHealth literacy scale. Journal of medical Internet research, 8(4): e27.
  56. Nettleton S., Burrows R., O’Malley L. (2005). The mundane realities of the everyday lay use of the Internet for health and their consequences for media convergence. Sociology of health and illness, 27: 972-92.
  57. Navarro F.H., Wilkins S.T. (2001). A new perspective on consumer health web use: “valuegraphic” profiles of health information seekers. Managed Care Quarterly, 9(2): 35-43.
  58. Morin A.J.S., Arens A.K., Marsh H.W. (2016). A bifactor exploratory structural equation modeling framework for the identification of distinct sources of construct relevant psychometric multidimensionality. Structural Equation Modeling: A Multidisciplinary Journal, 23: 116-39. DOI: 10.1080/10705511.2014.96180
  59. McIver J.P., Carmines E.G. (1981). Unidimensional Scaling. Thousand Oaks: Sage.
  60. Marton C., Choo C. (2012). A review of theoretical models of health information seeking on the web. Journal of Documentation, 68: 330-352. DOI: 10.1108/0022041121122557
  61. Manierre M.J. (2015). Gaps in knowledge: tracking and explaining gender differences in health information seeking. Social Science and Medicine, 128: 151-158.
  62. Longo D.R., Schubert S.L., Wright B.A., LeMaster J., Williams C.D., Clore J.N. (2010). Health information seeking, receipt and use in diabetes self‑management. Annals of Family Medicine, 8: 334-40.
  63. Li J., Theng Y.L., Foo S. (2016). Predictors of online health information seeking behavior: Changes between 2002 and 2012. Health Informatics Journal, 22(4): 804-814. DOI: 10.1177/146045821559585
  64. Lambert S., Loiselle C. (2007). Health information-seeking behavior. Qualitative health research, 17(8): 1006-19. DOI: 10.1177/104973230730519

Alessia Bertolazzi, Linda Lombi, Marco Terraneo, Measuring Health Information-Seeking Behavior: The Online Self-care Scale in "SALUTE E SOCIETÀ" 3/2023, pp 177-195, DOI: 10.3280/SES2023-003013