Communication for "patient liberation". The role of new media in the case of chronic cerebrospinal venous insufficiency (CCSVI) in multiple sclerosis (MS)

Titolo Rivista SALUTE E SOCIETÀ
Autori/Curatori Ivana Matteucci
Anno di pubblicazione 2021 Fascicolo 2021/1
Lingua Italiano Numero pagine 15 P. 165-179 Dimensione file 420 KB
DOI 10.3280/SES2021-001012
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The article examines the opportunities for change in new media narratives. In this case new media become tools calling for "patient liberation". A case-based qualitative study was devel-oped and a phenomenological-interpretative-anthropological narrative-based medical approach was applied to examine written narrations produced online by patients, to gain insights into their experiences of illness and underlying socio-cultural factors. We found that online narra-tive played a significant role leading to greater awareness and individual empowerment of pa-tients, and fostering mutual support and the development of community actions at the collec-tive level.

Parole chiave:Narrative-based medicine; communication; new media; health; multiple sclerosis; doctor-patient relationship.

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Ivana Matteucci, Communication for "patient liberation". The role of new media in the case of chronic cerebrospinal venous insufficiency (CCSVI) in multiple sclerosis (MS) in "SALUTE E SOCIETÀ" 1/2021, pp 165-179, DOI: 10.3280/SES2021-001012